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Should People with Severe Chronic Pain be Allowed Assisted Suicide?

31 Jan

They say that suicide is a permanent solution to a temporary problem. However, what if it’s not that easy? We allow patients with terminal cancer seek a humane way out. So, why can’t those with debilitating chronic pain seek the same relief? I’ve thought about this some over the years and still can’t come up with a good answer to that one. I’ve thought about suicide as a way to end the pain, but I would never do it. I personally struggle with a chronic condition that isn’t even on the same magnitude as the woman mentioned in the article below. How can we, as a self-labeled compassionate race even begin to comprehend what some chronic pain sufferers go though and how can we judge them? This woman is not a 16 year old boy or girl with depression and social issues that feel that death would be preferable to their emotional pain. This is a 44 year old woman who has lived life and determined that the pain just isn’t manageable anymore. If nothing else, this article shows us that the problem of chronic pain isn’t just silent. Doctor’s need to listen more, and help.

I would like some feedback on this. What do you think? Would you ever consider suicide to end the pain? If so, why? What magnitude of pain do you think warrants this extreme action? Are there moral or ethical complications that you can think of? Let’s start a conversation about this.


Chronic-pain patients at high risk of suicide

January 29, 2013 by Marni Jameson in Psychology & Psychiatry

Two months ago, Gary Rager’s girlfriend asked him to do the unthinkable. The 44-year-old woman, who has suffered disabling pain for the past three years, asked Rager if he would help her end her life.

“I don’t want to kill her, and I don’t want to go to prison. But I don’t want to see her suffer anymore either,” said Rager, a 59-year-old Sanford, Fla., sculptor whose work appears at area theme parks and public spaces throughout Orlando, Fla.

Such are the desperate measures that many afflicted with chronic disabling conditions – and those who love them – contemplate.

Some do more than think about it.

Like many patients in chronic pain, Karen Brooks has seen dozens of doctors over the past few years.

All take tests and discuss her physical health, but few have inquired about her mental health, said her sister, Michelle Brooks, of Maitland, Fla., who takes her sister to her doctors’ appointments.

Given the high correlation between chronic illness or pain and depression – even suicide – more providers need to bring up the dark subject, health experts say.

Large-scale studies show that at least 10 percent of suicides – and possibly as many as 70 percent – are linked to chronic illness or unrelenting pain.

Authors of a 2011 British study that looked at the link concluded that patients with such conditions “should be considered a high-risk group for suicide … and much greater attention should be given to providing better … psychological support.”

But doctors are often too busy focusing on physical problems to deal with the mental ones that go with them, say those specializing in chronic illness.

Brooks has been diagnosed with several medical conditions in an attempt to explain and treat the severe pain that consumes the left half of her face. Her most recent diagnosis, which she got last week, is rheumatoid arthritis.

A progressive, chronic disease that causes painful inflammation in joints throughout the body, rheumatoid arthritis is often misdiagnosed, said Dr. Shazia Beg, assistant professor of rheumatology at University of Central Florida College of Medicine.

Though she is not Brooks’ doctor, Beg said the recent diagnosis could very well explain Brooks’ chronic facial pain as well as her overall stiffness, wasting and suicidal thoughts.

Today, at 5 feet 5 inches tall, Brooks weighs just 90 pounds – 40 pounds less than in better days. She can’t chew, or eat solid food, or get up or walk by herself. She needs someone with her 24 hours a day.

“I can’t imagine living 20 more years like this,” said Brooks, sitting in her mother’s compact Winter Park, Fla., home.

“It’s hard to watch someone you love be in pain and fade away,” said Rager, who met Brooks in 2007. “But the way the medical system is set up, there’s nothing we can do. She has to suffer every day from now until she dies.”

Brooks traces the pain in her jaw back to 1999. She went to several dentists and cranio-facial experts. She tried acupuncture, pain medications, laser pain treatment and even brain surgery, during which a neurosurgeon moved some blood vessels pressing on a facial nerve.

Nothing has brought relief.

“They euthanize a poor animal that’s suffering, and call that humane,” said Rager. “But they will let a person rot away over years. That’s just wrong.”

“It’s so sick that these prisoners on death row who have killed 20 people get to lay there with a needle and just fall asleep,” said Brooks. “That’s the best way to die, and they’re the ones who get to die that way.”

“It’s well-known that people with rheumatoid arthritis have a high risk of depression and anxiety,” said Beg. About one-third suffer from these mental-health problems.

Many believe the number is probably higher, but many patients and doctors don’t talk about it.

Depressed patients do worse with pain relief, which puts them at an increased risk of death from suicide, studies show. That’s the case not only for patients who suffer from autoimmune diseases such as rheumatoid arthritis and lupus, but also for those with heart disease and cancer, experts say.

“We know that chronically ill patients who are also depressed have lower rates of compliance with their health plans, and poorer outcomes,” said Dr. Julie Demetree, a psychiatrist at South Seminole Hospital, in Longwood, Fla.

Although doctors are paying more attention to the relationship between chronic pain and illness and suicide, “there’s still room for improvement,” she said.

Part of the solution is for doctors to listen more. “You can get a lot from a patient in a 20-minute visit without having to order tests,” said Beg.

“Not every specialist is trained to treat depression, but all are trained to ask about it, and that’s not done,” she said.

Because Brooks is on Medicaid, the list of doctors she can see is short, and the wait for an appointment often long.

Last April a primary-care doctor referred Brooks to a rheumatologist, a doctor who specializes in arthritis. She finally got in to see him last week. He diagnosed her as having rheumatoid arthritis, but never asked about her mental health, said Michelle Brooks, who sat in on the visit.

Though Brooks still feels her situation is hopeless, Rager and her sister are hopeful that the new diagnosis and new treatment regimen, which includes steroids, will turn her around.

“If the diagnosis is correct – and today’s blood tests are very accurate – and she gets proper treatment, I would expect her to get better,” said Beg.

“I can’t believe it’s taken us so long to get here,” said Rager. “If this really is the solution, think of all the suffering that could have been prevented.”

(c)2013 The Orlando Sentinel (Orlando, Fla.)
Distributed by MCT Information Services

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3 responses to “Should People with Severe Chronic Pain be Allowed Assisted Suicide?

  1. Free Monkey

    February 1, 2013 at 02:07

    Calling it suicide, not euthanasia, the distinction is not made between someone who needs help (whether physically or psychologically) and someone with an unbearable, intractable illness who has tried everything and run out of options.

    There is no point just putting someone on antidepressants and sending them for therapy if the pain and the practical aspects are ignored. If they are not receiving proper treatment for their condition, their pain is under treated and they are not getting adequate support in the community of course they are going to be carrying a heavy burden, physical or psychological one cannot be a substitute for the other. With the current opioid phobia, aggressive drug legislations, limited access (both medically and financially) to effective treatments (drug and therapeutic), long waiting lists, an aging population and an out of sight out of mind attitude toward people living with chronic pain the situation will only get worse.

    There is a fight to have chronic pain classified as an illness in its own right which I think will help, for chronic pain to be counted alongside other illnesses people seek euthanasia for would bring it in line with other patents in the euthanasia debate. As to whether or not I would consider doing it myself I was brought back from the brink by a long overdue surgery, I was in 10 out of 10 pain most days and nothing they prescribed worked, my health was deteriorating, I couldn’t care for myself and I didn’t think I was going to hold out long enough to get the surgery, people die on waiting lists here as it is without suicide contributing. So many people are suffering who could have access to better treatment if the healthcare system was properly audited and sensible legislation put in place, there are so many gaps and so much waste. My fear is on the one hand euthanasia being seen as an acceptable substitute for proper care and on the other the denial of it for people who have reached the end of all options.

     
    • DIH

      February 1, 2013 at 10:50

      I agree that the distinction needs to be made. Unfortunately, here in the United States, it’s still referred to as assisted suicide. I do think that this phrasing is misleading and has a negative stigma attached to it. IF those in need can get the help and compassion that they deserve, this conversation would be different. We live in a society where it’s considered wrong and unimaginable to seek alternative options such as euthanasia due to the misunderstanding. It’s considered weak and unnecessary. I am interested in seeing where this goes in the future. Thank you for your comment!

       
  2. edschlosser

    June 25, 2014 at 12:34

    Of course people with chronic pain have a RIGHT to end their lives. No one needs to permit it because it is a fundamental human right. America is a fascist nation of superstitious morons who believe they have a right to tell others they MUST suffer for their mythical sky god. Cruelty and stupidity go hand in hand.

     

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