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I’m a #Spoonie! Are You?

16 Apr

If you have Lupus, you know how daunting the diagnosis, pill regiment, family education, and the all-around stress can be. Well, now you don’t have to go it alone! Christine Miserandino, the founder of ButYouDontLookSick.com is now heading up a lecture series on WebMD that covers everything from helping the newly diagnosed to deciphering the secret language of lupus (c.f. The Spoon Theory). Here is a quick bio of Christine from the WebMD Lupus Community:

Christine Miserandino is an award-winning writer, blogger, speaker and lupus patient advocate from New York. Her writing about lupus and her “Spoon Theory” of communicating about lupus has been featured in numerous newspapers, magazines, medical newsletters and television media, as well as on her website ButYouDontLookSick.com

From the age of fourteen, Christine Miserandino was diagnosed with a myriad of illnesses from Chronic Fatigue Syndrome to Epstein Barr, and finally, many years later, was given a diagnosis of Lupus. Though battling a shopping list of symptoms, Christine has consistently been told, by both well-wishers an doctors alike, “But you don’t look sick.” as if that was some kind of compensation for being chronically ill. Many times, being pretty or not sickly looking, made it harder to validate an illness you cannot see.

Christine is currently a member of the board of directors for the Lupus Alliance of America (National) as well as the Lupus Alliance of America Long Island/Queens Affiliate. Her passion is helping those with Lupus through her writing, speaking, volunteering, and work as a patient advocate. When not advocating for lupus awareness; Christine loves spending time with her daughter Olivia. She enjoys scrapbooking, music, and theatre.

Please take a moment to visit her WebMD channel and also check out her twitter feed @bydls.

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Posted by on April 16, 2011 in Uncategorized

 

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