I will be adding newer and more relevant content in the coming weeks as well as changing the layout of the site a little. I will be pulling more info from not only reputable news sources, but through blogs on the same topics. Stay tuned as this blog becomes a better user experience for YOU! Please check out our new image page titled, “Spoonie Images“. This will be a personal repository of images that are related to Christine Miserandino’s Spoon Theory.
This article is simply a good read-and-share. Let everyone you know and trust read this in order to further understand the life we sometimes live. It may help in their understanding and patience.
HIDDEN FEAR: Chronic pain means never knowing how well you’ll be able to function.
I have a broken back, nerve-damaged knee, arthritis and to compound all that, obesity – a direct byproduct of the injuries and severe depression that came along with them.
I wrote this when someone near to me said she couldn’t understand what I went through on a daily basis, but wanted to.
I hope this help others who suffer chronic pain explain it to their loved ones. This may not be how it is for everybody but it seems true for many, judging by the responses I’ve had.
What is chronic pain?
This is a great article to pass along to friends and family. While we (those with a type of pain affliction), know and sometimes even understand what is going on with our body, we truly suffer from multiple directions. Not only are we stuck with the pain, we are also stuck in our own heads with what to do with this knowledge. Pain, being an invisible illness doesn’t help us in the least. It is impossible for us to relate the measure of our pain – either physical or emotional. There is no way for those without pain to relate to us, and in most cases pain can cause a wedge in relationships. It is exceptionally difficult to keep up with the daily grind and pretend like nothing is wrong. Hopefully this article can shed some light to those you choose to share it with. Another excellent resource to share with friends and family is: butyoudontlooksick.com run by a phenomenal silent-illness advocate (Christine Miserandino).
Areas of the brain that process physical pain share real estate with our emotion centers, making a multipronged approach to pain treatment essential.
No doubt many people suffering from chronic pain have heard the phrase, “It’s all in your head.” The reality is that all pain — whether caused by a broken leg or fibromyalgia — is processed in the brain, right alongside parts of the brain that regulate emotions.
This overlap between emotion and pain, however, is not a roadblock to better health. Instead, it can provide a pathway for people to gain control over their chronic pain.
“I’ve found that being positive and optimistic, staying hopeful, and really focusing on helping other people has been a wonderful way to get through it,” said Ashley Boynes-Shuck, a blogger and health advocate from Pittsburgh, Pa. She has been coping with juvenile idiopathic arthritis and chronic pain since she was ten years old.
Pain and Emotion Share Real Estate in the Brain
This seems like a phenomenal idea. This allows the patient to put their care into their own hands. I wish America would follow suit on this. Cultivating your own medicine and regulating your dosage allows for a sense of control usually lost on patients who use medical marijuana for legitimate purposes.
Published July 22, 2014
A German court ruled on Tuesday that some people suffering from chronic pain should be able to cultivate their own cannabis “for therapeutic purposes”.
Five people suffering from chronic pain brought the complaint to a court in Cologne after Germany’s Federal Institute for Drugs and Medical Devices (BfArM) refused them permission to grow the plant at home.
The court said the BfArM had to reconsider three of the requests that it had rejected.
While the plaintiffs all had permits to buy and consume cannabis for therapeutic purposes, they wanted to cultivate their own because they could not afford to purchase the drug and their health insurance did not cover it.
I am glad that finally someone has discovered the sense to act on this. Illinois has now legalized medical marijuana for children with seizures. I thought that this would have take much longer to come to fruition – it has been hard enough to legalize MMJ for adult use! I am interested to see where this goes. I am just glad that children are now getting the relief they need.
Posted: 07/20/2014 5:29 pm EDT Updated: 07/20/2014 5:59 pm EDT
July 20 (Reuters) – Illinois children and adults with epilepsy will soon be allowed to use marijuana to ease their symptoms under a law signed on Sunday by Democratic Governor Pat Quinn, the latest in a series of measures loosening restrictions on cannabis by U.S. states.
The move to add epilepsy and other seizure disorders to the list of conditions legal to treat with marijuana or its extracts comes as numerous states have made medical use of the drug legal. Two states, Colorado and Washington, have legalized its recreational use.
Read the rest of this entry »
How to Talk About Pain – Courtesy of http://www.nytimes.com/
By JOANNA BOURKEJULY 12, 2014
LONDON — IN 1926, Virginia Woolf published an essay on pain, “On Being Ill.” Isn’t it extraordinary, she observed, that pain does not rank with “love, battle and jealousy” among the most important themes in literature. She lamented the “poverty of the language of pain.” Every schoolgirl who falls in love “has Shakespeare, Donne, Keats to speak her mind for her; but let a sufferer try to describe a pain in his head to a doctor and language at once runs dry.”
Where are the novels or epic poems devoted to typhoid, pneumonia or toothaches, Woolf wondered? Instead, the person in pain is forced to “coin words himself, and, taking his pain in one hand, and a lump of pure sound in the other (as perhaps the inhabitants of Babel did in the beginning), so to crush them together that a brand new word in the end drops out.”
The difficulty in talking about painful sensations forces people to draw on metaphors, analogies and metonymies when attempting to communicate their suffering to others. Woolf — writing nearly a century after the popularization of ether, the first anesthetic — was perhaps too pessimistic about the creativity of sufferers. Take lower back pain, the single leading cause of disability worldwide. In the 1950s, one sufferer of back pain said that it felt like “a raging toothache — sometimes like something is moving or crawling down my legs.” Half a century later, one person confessed that “my back hurt so bad I felt like I had a large grapefruit down about the curve of the back.”
Woolf would not have been impressed perhaps by claims that backs hurt like a toothache or a grapefruit, but she was right to recognize that people in pain seek both to describe their suffering and to give meaning to it.